标题: hogan eat a lot of drugs [打印本页] 作者: ovkysc3k2 时间: 2014-10-31 04:56 标题: hogan eat a lot of drugs and ultimately, Zouzheng Tao mother heard the doctor's mouth firmly words - Gaucher disease, and there was Beijing patient in the book,hogan, only two cases.Other rare disease before diagnosis,air max one, the patient had "gone", son, Culture and Sport is an WAS (eczema and thrombocytopenia associated with immune deficiency syndrome) patients,tn requin, a blood sample was Yanzhen Ming took the child to the hospital diagnosis Hong Kong before she was diagnosed with this disease, but in his contact with patients in the family, some parents have not to wait until the Hong Kong Hospital reports,red bottom platform pumps, the children had already died - because diagnosed too late. Yan Zhenming often caught scared there: If you do not succeed, "self-help", children's blood samples to Hong Kong diagnosis, but rather rely on the hospital "stop-gap" of the so-called symptomatic treatment,air jordan, a small recreational whether it can safely stand in front of him.On the "2013 Second China rare disease Summit", a rare disease specialist Shanghai Medical Association branch chairman John Reading noted that because many doctors limited awareness of rare diseases,woolrich milano, there is misdiagnosed 44% of rare diseases,hollister, 75% of rare disease treatment is not standardized."Every one of the rare patients may have this experience, I do not know in the process of turning a doctor how many hospitals do a lot of pointless checks,abercrombie france, eat a lot of drugs, spent a lot of money, but because the very low incidence of rare diseases clinical manifestations of complex and difficult screening and other causes of cognitive low diagnosis rate is not high, even many doctors do not know. "People's Liberation Army General Hospital, pediatric medicine physician,scarpe hogan, genetics Boshi Meng Yan on the" well-off "said.In the sub-master Peking University Department of Genetics seems sicker rare diseases and common diseases easy to distinguish, but more rare disease and is buried in the "common", so rare disease patients an estimate of the population is difficult to find "rare disease" long way to go.The reality is that currently the country only Shanghai.
Beijing,hogan olympia, Guangdong Branch Medical Association established a rare disease,hogan outlet, but across the country, research and drug development for rare diseases medicine should say was a "blind spot", many grassroots medical workers urgently improve the diagnosis and treatment of rare diseases,hogan rebel, rare diseases,outlet hogan, such as metabolites diagnostic analysis, genetic analysis, enzymatic analysis or biopsy protein analysis, often rely on the lack of advanced instruments and laboratory equipment, which are made in the diagnosis of rare diseases greatly challenge.Disease to dilute the "expensive"After twists and turns when the "rare disease" ferret out.
does it will be able to "kill" it?"Most rare diseases are caused due to a genetic defect genetic disease, the best cure is gene therapy, but the current gene therapy technique is still in the research phase,Giuseppe Zanotti Paris, so the vast majority of genetic disease in a non-specific treatment of the condition, only can give some symptomatic treatment for the symptoms of the disease. "Meng Yan said.According to the international medical statistics, in 6000 to more than 8000 kinds of rare diseases have been found in only 1% diseases have specific treatment.Gaucher disease is the lucky one percent. 1991, Gaucher disease in Chinese or "incurable", at the edge of life and death experience,scarpe hogan, the mother by Beijing that the United States.
" to "off," said.At first, due to liver function abnormalities have been "diagnosed" as hepatitis B, no effect six months after treatment,parajumpers homme, the doctor can not tell why, then there might be someone around to remind schistosomiasis, mother and grandfather brought him back to Jiangxi specialized home called "schistosomiasis" expert,chaussure jordan, was when the dog days of summer, just under the train Zouzheng Tao on prickly heat and played a high fever, after timely rescue to save a life before. Until the summer of 1991, Beijing Children's Hospital,abercrombie, a doctor with experience in medical records after reading , suggested that he do a bone marrow test.
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