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According to British media reported on the 6th,http://my.5754.cn/home.php?mod=spacecp&ac=blog&blogid=,moncler sito ufficiale, the British girl Grace? Riddle, now 4 years old, suffers from a rare disease almost do not know what that pain may easily fall into danger. To find ways to take care of her parents, called "the world's most careful parents."
Rare Diseases
Born 12 days without a valid therapy to detect abnormal
Grace was born in April 2007, the family also has a 9-year-old brother Harry and 18 months younger brother Charlie, the brothers health.
Mother Emma recalled that 12 days after birth,http://e.wz.cz/403.html, the doctor told her to suffer Grace Smith - Maji Li syndrome. The disease is caused by abnormal chromosomes affect several parts of the body, causing mental retardation, facial abnormalities,http://dev.juicecode.org/discuz/forum.php?mod=viewthread&tid=95768, sleep disorders and behavioral problems.
The disease was first discovered in the 1980s in the United States,peuterey piumini, the incidence rate is about two five parts per million, so far there is no effective treatment.
Emma said: "Grace was born,piumini moncler outlet online, I know there is something wrong, I knew ...... hear doctors say our newborn baby has Smith - Maji Li syndrome,http://blog.zzwoo.com/forum.php?mod=viewthread&tid=1411539, which really makes a crash."
"I do not know what it means to this disease, so the Internet to check the results make me panic, all materials are negative." Emma said.
Cautiously
Parents awake at night soft wrapping wall head on the wall
Emma said the couple refused to leave for the care of Grace almost.
Grace has no concept of danger, "such as we walk together on the road,http://www.wuliaole.com/read.php?tid=55613&ds=1, even his brother Charlie will pay attention to see the car, but she will not." In addition, Grace's pain points higher,http://www.thecandyland.org/item/create_form/1593, "she can hold the hot radiator or kettle, when realized that the pain was too late."
Affected by the disease, Grace awake at night,air max requin, which made her depressed,http://forum.longquanzs.org/forum.php?mod=forumdisplay&fid=259&mod=spacecp&ac=blog&blogid=, "Sometimes we can hear her head against the wall." Emma said,hogan italia, this will affect the rest of Harry, sometimes, he turned on the radio,nike air max pas cher, trying to cover up "noise." To solve this problem, the couple had to use a soft cloth to wrap Grace bedroom wall.
"Sometimes it is difficult, Grace does not like other people touching her, she would suddenly lose control,woolrich outlet, screamed ...... she could not control myself." Emma said.
Optimistic view
Unique talent now touch-screen computers,hogan milano,http://www.amarilfranklin.com.br/index.php?option=com_blog&view=blog, "play slip"
Under the meticulous care of their parents, Grace never hurt, also entered Brace special school. "(Take care of Grace) so that we become the world's most careful parents." Emma said.
Father Mark said that some people with the same disease and Grace kids quite talented in computers, Grace using touch-screen computers at school also showed a unique talent,air max france, "may have the potential unknown to us,outlet ufficiale moncler, we are trying to find."
Mark said that to take care of Grace, the couple spent a lot of energy,hogan uomo, "We have learned to adapt to her, but I do not know other people, even relatives can not realize how hard it is to go out every time we had to prepare ...... alternatives ... ... The minute she (Grace) is still happily dancing, the next minute might kneeling on the ground shouting. "
Still,tiffany outlet, Grace still give them a lot of joy. Text / Xinhua News Agency