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发表于 2015-2-18 11:56:23 | 只看该作者 回帖奖励 |正序浏览 |阅读模式
The boy looked forward to the final year of continued life dying cell sister
Five age children in urgent need of stem cell transplantation prolonging cell sister, mother, sister runaway cell refused to meet, finally persuaded her father many times to find
Year-old last May  suffering from a rare genetic disease, if not as soon as hematopoietic stem cell transplant, life is bleak, and his father was diagnosed with hematopoietic stem cells do not match, want to completely maintain the mother and sister who both intracellular . However, before the kid diagnosed Qi, Rong A mother and her two daughters gone and the father of four went to Guangxi Pan Xianzhong tracing, until last week, now the final turn.
The bad news continued life boy urgently stem cells
And ordinary child is different than a lot of the same age  NPC's head, there was a marked prominent eyeballs, fingers can not be straightened, these are people with obvious features of mucopolysaccharidosis child. This is a very rare genetic disease, the only way to save the child, that hematopoietic stem cell transplantation. The father Pan Xianzhong hematopoietic stem cells diagnosed mismatch. Son diagnosed last May from the beginning,  began a race against time,http://karua.at.webry.info, he must find a wife and two daughters as soon as possible.
2000 to work in Shenzhen, Yantian Pan Xianzhong been open truck. And two daughters have been in foster care in the home Luoyang different year-old son is in his hometown, although born Pan Ziqi, but has been with the couple grew up in Shenzhen. Because it is only an only child, Pan Ziqi is regarded as the home of the treasure,louboutin homme pas cher, as long as the child wants a toy, Pan Xianzhong will all buy.
In March last year, because of household chores, the couple had a big one, A Rong wife contacted two daughters home away from home. And in May that year, Pan Ziqi was diagnosed with mucopolysaccharidosis.
blood samples have been admitted to the hospital sentenced to death, the doctor said,moncler uomo, the possibility of fellow sisters who carry the genotype and  biggest matches. From October last year, Guangxi Pan Xianzhong around to find his wife and daughter, as he insinuated learned from relatives, they open up "new business" in Guangxi. He said after his son was diagnosed, although occasionally his wife answered the phone, but has refused to let the two sister cells of hematopoietic stem cells were paired with , also refused to show up. Inquire from his wife's relatives at the news, even at times to find flounder, unfortunately, has never gains.
Father of four to help find his wife and daughter in Guangxi
In January this year, A Rong agreed to let his two daughters to express blood. BGI will Panzi Qi blood samples and blood samples were analyzed two sisters, sister of blood samples and determine the HLA genotype Ziqi completely consistent, capable of hematopoietic stem cell transplantation. BGI excellent health gynecology clinic director Zhang Fuping revealed as a rare disease mucopolysaccharidosis disease is proteoglycan catabolism disorders due to proteoglycan-degrading enzymes caused by congenital defects, mostly in a mucopolysaccharidosis levels around the age of onset, the death of around 10 years old,http://www.xiyatour.com/home.php?mod=spacecp&ac=blog&blogid=, if the child's change of hematopoietic stem cells, it may be able to compensate for the genetic defect problem child. Although the success of the operation can not be a hundred percent,http://www.haokc.com/space/space.php?uid=1047066&do=blog&id=9110447, but at least more than a hope of survival.
Sometime,http://kubikino.ne.jp/cgi-def/admin/C-002/sekikawa/visit/main.pl?PAGE_N, although blood matching genes, but a month later  again contact his wife and two daughters want to deep-transplantation of hematopoietic stem cells, the other party has manifested hesitation and hesitation, "or refuse to show up, the good words spoken refused." Finally,hollister soldes, he was only a desperate, last Tuesday came fourth in Nanning, Guangxi, involvement in the local media, to the local police station and obtain a Xianhu two addresses eldest daughter in the process of registration of temporary residence permits, and then what you want, touch the door to go. It is disappointing that,http://lee-lee-lewis.com/index.cgi, where a room showing signs of uninhabited, while another address while nobody answered the door.
The longer the time, the more Pan Ziqi slim hope of recovery, Pan Xianzhong decided to squat in the second district. Hard work pays off, around 17:00 last Tuesday, hiding in the garden district, he finally found the eldest daughter of the figure, he immediately rushed forward a stride, the eldest daughter dragged to the side.
"At first she refused to return to Shenzhen, worn refused to utter words," Pan Xianzhong said the eldest daughter wants to pin down, but also worried about her son again to slip out from under the eyelid, he simply pack the car, she was locked In the car, after talking for a few hours, the other finally relented and agreed to talk with her mother about.
Reunion transplants today to Shanghai
Last night, A Rong her two daughters embark on a train to Shenzhen. As promised, today will accompany  Rong A complete hematopoietic stem cell transplant in Shanghai Children's Medical Center, and has been accompanied by a child to complete the operation.
Yesterday morning, A Rong and two daughters were at BGI clinic mucopolysaccharidosis genetic testing for more than a year has not seen her mother, Pan Ziqi seems quite nostalgic and kept clutching her mother's wrist, or simply plunge into her arms. Sister Joan apparently with more profound feelings of his brother, though declined to be interviewed, but in  refusal of blood and howl, has been tightly holding his brother.
"My son is very smart, and he had previously been hosted at the home of justice," to see his son, Ah Rong also Yancangbuzhu smile on his face. She said her husband is a major cause of hot temper led to the mother and the three runaways, because he often hit anyone, leading to the house deserted, while sensible son often will come forward at this time, it will stop Dad .
But Sister Ali still conceal his father's anger, she said,http://www.xjxg.cn/thread-1863981-1-1.html,nike tn pas cher, the father has been patriarchal, favoring year-old brother, just returned home, often for the sisters frequently beaten after sick brother, father or even on the phone propaganda, they would rather sacrifice, we must also younger brother, and the words, but also a mother and three completely cold heart, leading to their reluctance to come forward.
A Rong said, more than a month after the birth of two daughters, her husband did not look at, but is the last born son, was placed in the hands of his love, his head heat intolerance, and fear in your mouth technology, and inevitably make her feel disaffected generation.
And this life of the mother and three away,  with the "pyramid" to summarize, he revealed that his wife and daughter had invited friends and family together to receive Guangxi, "and seek common development," the solicitation. For MLM accusations, A Rong noncommittal,http://qenergyspa.com/forum36/topic.asp?TOPIC_ID=447107, she had some vague responses, everyone has their own dreams, and her two daughters have been more than 20 years old, have their own ideas, and I want to do something about it. The Nanning Xianhu police who participated in the search for her daughter Rong A police officer revealed, there is no evidence that her daughter into a MLM A Rong, now wants to be able to take the family reunion, to heal old son.
For the wife and daughter of the accused, Pan Xianzhong categorically denied that he insists if sick daughter, will make every effort to treat. But if the wife still duplicity, delayed treatment of his son, still will not hit the wrong photo.
A Rong said, wanted to be able to live a good husband and children,parajumpers homme, as long as the husband can get rid of bad temper problems. For as they have refused to show up, resulting in possible danger son's condition, A Rong respond faceless are compelling reasons, can not tell.
Sister Ali said that in the end would be responsible for his brother's illness, but after his brother recovered, she would like to have their own lives.
Confide
Father always patriarchal, favoring year-old brother, as long as back home, the sisters often beaten at every turn. After his brother is sick, my father on the phone and even propaganda, they would rather sacrifice, we must also younger brother, and the words,http://www.88822.com/#87788/read.php?tid=980, but also a mother and three completely cold heart, leading to their reluctance to come forward. - Sister Ali
Wanted to be able to live a good husband and children, as long as the husband can get rid of bad temper problems. - A Rong
If you are sick daughter, will make every effort to treat. If the wife duplicity, delayed treatment of his son, still will not hit the wrong photo. - Pan Xianzhong
Psychological experts
Put aside grudges, for our children's health
Surgery and subsequent treatment  takes about 50 million, for the Pan family, this is undoubtedly an astronomical figure, Pan Xianzhong have to sell their trucks and old house in Luoyang, plus pre-donation, almost scrape together more than forty million. As for future rehabilitation costs, he plans to go step by step.
Currently  charity set up in Shenzhen account for  charitable donations and the use of every donation, there are documented. He said that if the money balances, can be provided to patients to use other mucopolysaccharides.
BGI side said, has been detected as well as eliminating the costs associated with two million since  mucopolysaccharides typical patient, the company launched a child with a child named Qi plans to provide free HLA marrow for patients mucopolysaccharides matching testing services.
Institute of Mental Health Director Yewei Ze whole revealed for the upcoming surgery  undoubtedly be a very painful process, this time the child will be very supportive needs of the community, especially to support the entire family atmosphere, it is recommended dad and sister can honestly communicate between each other can put aside grudges, after his brother, though small, but very sensitive to construct a good family atmosphere, but also allows Pan Ziqi better recovery. Timely treatment is recommended in Shanghai, please contact your local volunteer psychological intervention, psychological intervention to help the family.
Edition have written: Southern Reporter Wenting
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