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"I can barely bear yet it, but I can only be a number of conditions poor patients abandonment treated. "ROLLING to" off, "he said. However, lie in front of a rare disease, not only is the high cost of "orphan drug imports registered confronted with great difficulties, and the cycle is long,http://www.0777bdt.com/forum.php?mod=viewthread&tid=1575091&extra=, smooth approval of related drugs not normally listed in the short term,scarpe hogan outlet, resulting in the drugs can cure The patients do not get treatment. " Huang Yu expressed. This makes many doctors feel inadequate Xinyou, Meng Yan long-term concern mucopolysaccharides see disease, the cure for the disease has not been registered yet available in our country, but also without the approval of the State Drug Administration Department, "if the use of such drugs into the country without permission will encounter a lot of trouble,http://www.91en.com/thread-786830-1-1.html, for example,http://www.lookandlearn.com, no hospital dare to take risks for the child to use the medicine and completion of the injection. "Meng Yan said. In fact,parajumpers pas cher, the 2009 domestic release of "special approval of new drug registration regulations" expressly provides that: the treatment of AIDS, cancer,2014 Scarpe Hogan, rare diseases and other diseases with obvious clinical advantages for new drug application for registration under special approval,http://hongfan.nwu.edu.cn/blog/article.php?type=blog&cid=3&itemid=1831937, to be in the registration process Priority check, and strengthen communication with the applicant. However,hogan outlet scarpe, due to lack of reasonable operating mechanism,http://tsubame-jnr.bglb.jp,2014 Scarpe Hogan, so that these policies safeguard difficult landing. As health workers,nike sneakers, Huang Yu said he understood national sector on imported drugs for rare diseases,abercrombie roma, "cautious" attitude.
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