tn soldes although Deng Yifang received donations from the community

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,tn soldes
a time Zouzheng Tao even lost the courage to live, until December 1997, Genzyme drug free for him. Zouzheng Tao is a rare disease of the lucky ones, at Genzyme's drug donations, he successfully finished college, he stood in front of reporters in addition to short stature, but there is almost no "patient" traces, but some of his patients He was far from lucky. Beijing 7 in the register of Gaucher disease patients, Deng Yifang medication is the only one at their own expense. When she was diagnosed,scarpe hogan uomo, Genzyme donated medicine program is no longer accepting new members, although Deng Yifang received donations from the community, but with respect to 190,air max,000 yuan a month but still a drop in the bucket of drugs, and did not follow the doctor asked The dose injection, spleen large that it can not stand in an uncomfortable when injected once only. "No cure, treatment can not afford the drugs, which is a common state of Chinese rare disease groups face." Yu Huang, said the group is relatively small because of illness,parajumpers femme, almost all domestic pharmaceutical companies are reluctant to get involved in research and development of drugs for rare diseases, production in developed countries and regions for drugs to treat rare diseases, only a few drugs through the approval entered the Chinese market. But the absence of policy support and related health care, most patients can not afford the high cost of these drugs, some people can only give up treatment. Who rare disease "pay"? In all rare disease, only with domestic pharmaceutical production cure for hemophilia, domestic pharmaceutical companies collectively "absent" Behind the rare disease drugs, it is not clear economic benefits. "R & D capability aside not to mention, compared with generic drugs,outlet hogan, especially drugs and put into production in the economic efficiency of enterprises do not have the 'faster' advantage, coupled with the domestic policy of no help rare disease drugs.
making these policies protect the difficult landing. As a medical worker, Yu Huang said he understands the various departments of the country imported rare disease drugs "cautious" attitude, "wants the state to the early establishment of the green channel imported drugs for rare diseases.
said. This makes a lot of doctors feel inadequate Xinyou, Meng Yan long-term concern mucopolysaccharides  see disease, cure for the disease has not been registered yet available in our country, but also without the approval of the State Drug Administration Department, "If the use of such drugs into the country without permission will encounter a lot of trouble, for example,zanotti pas cher, did not dare to take risks for the children hospital use and complete the injection of the drug. "Meng Yan said. In fact, in 2009 the domestic release of "special approval of new drug registration regulations" expressly provides that: the treatment of AIDS,outlet hogan, cancer, rare diseases and other diseases and has obvious clinical advantages of a new drug application for registration under special approval, to be in the registration process priority handling, and strengthen communication with the applicant. However, due to lack of reasonable operating mechanism.
many pharmaceutical companies reluctant 'fees that thing'. "a large domestic pharmaceutical companies responsible for the" off "frankly. Also from the profit point of view, some foreign pharmaceutical companies to enter the Chinese market also seems "no confidence" - because China rare diseases associated with lack of health insurance policy,scarpe hogan, the patient is likely to fly "off drugs", which brings a lot of businesses uncertainties. With the exception of hemophilia, other rare diseases are not within the scope of health insurance in the case of heavily dependent on imports effects of drugs, many rare diseases have to give everything, "pay", because it is their only option, but not all domestic medicines for rare diseases are helpless,tn, some drugs can relieve the symptoms of domestic became the last straw for many rare diseases. ROLLING is a LAM (lymphangioleiomyomatosis) patients,air max pas cher femme, which is a non-defective rare genetic disease, the patient is suitable for almost all age female fertility, often sudden pneumothorax in recent years Lilong Lin respiratory failure, both at home and abroad there is no cure for the disease,hogan outlet online, but rapamycin (clinically used for the treatment of renal failure) for the treatment of LAM has a supporting role, although rapamycin in a Medicare drug list, but because of the indications have been restricted directory Therefore, the exclusion of the rare disease,outlet hogan, ROLLING had to pay $ 3000 per month with drugs, which is almost half of her salary, "I can barely bear yet it, but I am very bad condition sufferers only abandon treated. "ROLLING on the" off "said. However, lie in front of a rare disease, is not only very costly "orphan drug imports registered facing great difficulties,outlet hogan, and the cycle is long, usually related to drug approval in the short term can not be successfully listed,scarpe hogan, resulting in the drugs can cure The patients do not get treatment. " Yu Huang.
she squats in the US Embassy a month, finally got the opportunity to communicate with Genzyme,tn air max 2014 pas cher, that imiglucerase for injection can effectively relieve the symptoms of Gaucher disease, Zouzheng Tao mother "ecstatic," but we need 1480 dollars per 400u, which makes She stunned. Although the high price, but better than no drug can cure, and finally through collaboration donation parents after the unit, as well as the foreign exchange bureau,parajumpers homme, Food and Drug Administration,hogan outlet, Zouzheng Tao finally spend the drug, and soon - his liver recovered,tiffany milano, whole body bone hurt easily, since carrying a bag happy school. Donations soon run out, and his family simply can not afford the high cost, only one year after the withdrawal  pain hit again so that he was dead - for Gaucher disease is a lifelong drug taking.
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